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What is Title V for Children with Special Health Care Needs?

Title V goes by several different names. Located within the Division of Developmental Disability Services, it is called Title V es for Children with Special Health Care Needs Program (or Title V for short).

Title V is a federally funded program to assist families with children with special health care needs (CSHCN), and or developmental delay and disabilities from birth to 18 years of age.

  • Special Health Care Needs include things like Diabetes, Asthma, Genetic Syndromes and other chronic medical conditions.
  • Developmental Delay and disabilities from birth to 18 years of age include things like Intellectual Disability, Cerebral Palsy, Epilepsy, Down Syndrome, Genetic Syndrome)
The services offered to families for medical care coordination include assistance with medical appointments, transportation arrangement, referrals to other agencies and/or service providers, school issues and obtaining medical equipment and supplies. It is our responsibility to see that CSHCN and their families receive the necessary services and supports needed to assure that the child reaches their greatest potential.

Title V CSHCN includes a team of nurses, care coordinators, and clerical staff to provide community support and referrals in every county in Arkansas.

How Can Title V CSHCN help my child?

Title V has many programs that are can be valuable for parents to know about. Please visit (http://humanservices.arkansas.gov/ddds/Pages/CSHCN.aspx) for more information about the many programs Title V CSHCN provides and how to get more information about them.

Some of the many DDS programs that Title V CSHCN can offer assistance with or referral for are:

  • First Connections/Early Intervention Services– birth to 36 months.
  • Intake information and referral for DDS Human Development Centers.
  • Community Care Coordination for CSHCN until age of 18 (unless the student is still in school, up to age 21). Examples could include diabetes, asthma, genetic syndromes, developmental disabilities or an array of chronic medical conditions. Eligibility is determined annually.
  • Intake for DDS Community and Employment Supports (CES) Waiver Program. DDS diagnoses include Autism, Intellectual Disability, Cerebral Palsy, Epilepsy or Seizure Disorder, Down Syndrome, Spina Bifida, or may be attributable to other conditions closely related to an Intellectual Disability (due to resulting impairment).
  • Title V provides limited Family Support/Respite for children that meet eligibility requirements.
  • Diagnostic evaluation after insurance for potentially eligible Title V diagnosis with application regardless of income.
  • Title V CSHCN program provides services for children without Medicaid coverage that meet financial, age, residency and diagnostic criteria. Services are provided after insurance has paid. Services may include medications, diabetic supplies and on-going medical follow-up. Eligibility is determined annually.
  • Purchase of Specialized Medical Equipment for children that meet eligibility criteria, if funding is available.
  • Assistance in paying for medical camps such as diabetes, sickle cell and asthma.
  • The Parent Advisory Council (PAC) serves as a liaison between the families of CSHCN and existing resources. The PAC has representatives from across the state of Arkansas.

How do I get started finding out if DDS Title V CSHCN can help my child?

The first thing you may want to do is find the Title V CSHCN Care Coordinator in your area of the state and give them a call. They are very helpful and can give you information to help determine if your child is eligible for help from Title V. (see attached map/link below)

How can I be referred for Title V CSHCN programs?

There are many ways that a child can be referred to our services:

  • Self-Referral
  • Family member referrals
  • Local public school or Public School Co-op
  • Local Developmental Day Treatment Centers (DDTCS) or Child Health Management Services Clinics (0-5 program)
  • Other Department of Human Services Divisions
  • Therapy Providers
  • Head Start/Pre-Head Start Center/Daycare
  • Durable Medical Equipment Providers
  • Local Hospitals

Need a map of the Title V Care Coordinators by county? Click here.

Title V Care Coordinators contact info

We are here to help and support your family and your child. Please give us a call to see how we can be of assistance to you!

Title V Children with Special Health Care Needs
A division of the Arkansas Department of Human Services
Developmental Disabilities Services
PO Box 1437 Slot S380
Little Rock, AR 72203-1437
1-800-482-5850 Ext 22277 or 501-682-2277